Jessica Lewin Memorial Scholarship

About Jessica Lewin

Jessica Lewin was diagnosed with Crohn’s disease when she was 8 years old. From the age of 9 to 14 she spent ½ of her life at CHOP. Treatment for her disease required weeks/months of inpatient hospital stays. At the age of 13 she had a major surgical procedure (J-Pouch) at the Cleveland Clinic. This resulted in a temporary ileostomy which would be successfully reversed 9 months later. She had flare-ups and hospital stays over the next 6 years. 

In 2012 she had another flare up which resulted in a 4 month stay at Penn Presbyterian Hospital in Philadelphia. At that point the only option was to surgically remove 75% of her small intestine which resulted in a condition known as “short gut syndrome” and a permanent ileostomy. A scary proposition for a young woman. However for the next 5 years her quality of life increased by 100% and she learned to live with her ileostomy. Through counseling and the love and support of her family she accepted her fate. Her bond with her sister, Jaclyn, was unbreakable and forever. Jaclyn has been her protector, hero and inspiration.  She fell in love 3 years ago with a man that accepted her for who she was mind, soul and body.  Jessica passed away on May 7th, 2018 at the young age of 29.

All donations given to Girls With Guts in memory of Jessica will be used to establish scholarships in her name to send young women with ostomies to future retreat. Girls With Guts retreats allow women from all over the country with Crohn's, ulcerative colitis and ostomies to personally connect for a weekend of friendship, education, and empowerment.